As part of its ongoing commitment to improving the quality of care for patients with urologic disease, the AUA recently announced it is developing the AUA Quality (AQUA) Registry. The Registry is designed to provide data to help identify trends in the diagnosis and treatment of prostate cancer and eventual outcomes related to treatment options. The registry will be launched in 2014.
Q.What is a registry?
A registry is an organized system used to collect uniform data (clinical and other) on a broad population and to evaluate specified outcomes for the population defined by a particular disease or condition. It also serves one or more predetermined scientific, clinical or policy purposes. In contrast to clinical trials that only generate data about treatment effects in controlled conditions, registries provide evidence of the real-world results of medical treatments, services, and devices applicable to the diverse population.
Q.How are registries used?
As healthcare becomes increasingly driven by information on utilization, process, cost, and outcome, registries are considered one way to derive the necessary data as well as an effective tool to measure the quality of patient care. They are also less complex than other systems as they keep track of a sample of patients with a specific condition.
Q.What is the AUA AQUA Registry?
The AUA AQUA Registry is the first specialty-wide urologic registry at a national level, designed to measure and report healthcare quality and patient outcomes and provide data to help identify patterns and trends in the diagnosis and treatment of prostate cancer and eventual outcomes related to treatment options. Initially related to prostate cancer, the AUA AQUA Registry will be expanded to include other urological conditions. Additionally, focus of the Registry will include longitudinal follow up of patients so as to:
The plan for its development was recently approved by the AUA Board of Directors and will launch in 2014.
Q.How will data be collected for the Registry?
Participating urologists and/or practices will report data on prostate cancer testing, diagnosis, staging, treatment and outcomes for all men newly diagnosed with the disease by collecting, entering and transferring data to the registry from a web-based platform.
Additionally, a personalized portal will be developed for patients to report self-perceived outcomes on their quality of life. As its coverage grows, patients will have the tools to make informed decisions with their physician based on treatment options and outcomes of other patients similar to themselves.
Q.How will the AUA AQUA Registry be implemented?
The Registry will be implemented in a phased manner in terms of scope and functionality and will be developed under a sophisticated information technology infrastructure, which will include an electronic medical records capability so as to reduce or eliminate the data entry burden on physicians.
Q.How will the AUA AQUA Registry support urology practices?
The AUA AQUA Registry will be the only nationwide and urologic disease registry in the United States. It will provide powerful and useful information about:
Confidential, real-time data will be provided at the provider and practice level, with comparisons to regional and national averages. This will allow them to identify strengths, areas of opportunity and to document improvements in care.
Additionally, with reporting requirements approaching, a registry such as this can offer AUA members and stakeholders a solution for measuring outcomes that are not only meaningful to the practice of urology, but can also fulfill Physician Quality Reporting System and Qualified Clinical Data Registry requirements.
Q.What are additional benefits for AUA members?
AUA members will gain added benefit through membership that increasingly informs and influences the United States healthcare system and policy. Through their recorded clinical practice and patient outcomes over time, AQUA Registry participants contribute their practice information to generate a validated, real-world data set that can have a meaningful impact on the practice and the profession of urology in the era of the Affordable Care Act.
Q.How can I and/or my practice get involved in this initiative?
The AUA is currently seeking practice sites to participate in both the design and pilot phases. The design phase will kick-off at the beginning of 2014 and the pilot phase will start in July 2014. For those wishing to participate, please email firstname.lastname@example.org.