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<BiographyAUAnet ID="x23062" Name="Von Willebrand Disease Connect Foundation" IsComponent="true" Changed="20260603T14:50:27" Created="20260513T18:53:31" Published="20260605T10:56:22" SiteBaseUrl="https://www.auanet.org" Locale="" XPowerPath="/Home/Advocacy/Patient Advocacy/Coalition for Urologic Patients/Coalition for Urologic Patients Members/Adv_P-A_CUP_Members/Von Willebrand Disease Connect Foundation">
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  <Biography type="xhtml" UID="90596f3bfc69427f9f79d2727a8feaea" label="Biography" readonly="false" hidden="false" required="false" indexable="false" Height="" CIID="">&lt;p&gt;&lt;a href="https://www.vwdconnect.org/" target="_blank" title="VWD Connect Foundation (VCF) " rel="noopener"&gt;VWD Connect Foundation Inc.&lt;/a&gt; is a national nonprofit organization dedicated exclusively to serving individuals and families affected by severe von Willebrand disease (sVWD), an ultra-rare and life-threatening condition. Through annual in-person patient conferences and year-round virtual programming, they create meaningful opportunities for Members to connect, build community, and find support from others who truly understand their experience. By bringing patients together with medical, scientific, and allied professionals, they help strengthen the path to diagnosis, treatment, education, and awareness while also supporting research that benefits the von Willebrand disease community and moves us closer to a cure.&lt;/p&gt;</Biography>
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